![]() Leslie Benson is an attending physician in the Department of Neurology and the Assistant Director of the Pediatric Multiple Sclerosis and Related Disorders Program and Pediatric Neuro Immunology Program at Boston Children’s Hospital and an instructor of Neurology at Harvard Medical School. Her clinical studies focus on the cognitive and neuroimaging features of pediatric multiple sclerosis, while the basic science work focuses on T and B cell autoimmunity studies, MRI imaging and studies of viral triggers. She remains the lead investigator of the Canadian pediatric Demyelinating Disease Program. Banwell’s clinical and research interests are in pediatric multiple sclerosis and other inflammatory brain disorders. Banwell is now chief of Neurology at the Children’s Hospital of Philadelphia and Director of the Pediatric Multiple Sclerosis Clinic. Banwell was appointed as an assistant professor of Pediatrics Neurology at the Hospital for Sick Children and University of Toronto and was promoted to full professor in 2012. She completed a Neuromuscular disease fellowship at the Mayo Clinic in Rochester, Minnesota. Banwell graduated with a degree in medicine from the University of Western Ontario in 1991. For today’s podcast we are pleased to be joined by Dr. During the call if you have any additional questions, you can send a message through the chat option available in Goto Webinar. Just so everyone knows, the podcast is being recorded and will be made available on our website for download as well as via iTunes. SRNA is a nonprofit focused on support education and research of rare neuro immune disorders and you can learn more about us on our website at. GG DeFiebre: 01:34 Thank you so much Peter and Jen and the rest of the MOG Project. Jen and I both are both passionate about spreading awareness and sharing our stories about pediatric MOG antibody associated disease and we are so excited to be part of this podcast as well as The MOG Project. She is currently responding well to treatments and has regained the majority of her eyesight and is an active third grader. Her daughter Sophia was diagnosed with MOG antibody disease in January 2018 after a bout of autoimmune encephalitis and optic neuritis. Jennifer Gould contributed to this podcast. I would also like to mention one of our MOG Project members who I worked with together on putting this work together with putting these questions together for the podcast. She is still MOG positive and continues to receive treatments but has recovered greatly from past attacks and is doing very well currently. My daughter Isabel was diagnosed with ADEM in 2014, she relapsed in 2016 and was diagnosed with possible multi-phasic ADEM with optic neuritis and finally MOG associated antibody disease in May of 2016. Peter Fontanez: 00:27 Hello, my name is Peter Fontanez and I am a member of SRNA and MOG project which is a group of MOG patients and parents of patients who have been working to help with getting information out there regarding MOG. My name is Gigi deFiebre and I will be moderating this podcast along with Peter Fontanez whose daughter Isabel was diagnosed with ADEM and MOG Ab disease. Today’s podcast is titled Pediatric MOG Antibody Associated Disease and ADEM. GG DeFiebre: 00:06 Hello everyone and welcome to SRNA ask the expert podcast series. Connect With SRNA and Request Materials.
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